Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
    • Awards
  • For Patients
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
  • For Advocacy Groups
  • For Researchers
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice
  • English (UK, AUS, NZ, CA)
    • Français
    • Deutsch
    • Italiano
    • Español

Helping patients and caregivers share their voices

About Us

Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.

While we started by focusing on rare diseases, we now welcome patients and caregivers with all medical conditions.

Rare Patient Voice takes an active approach to meet patients at conferences and events. Our phone is always open to members. The more we can engage with patients, the more we can advocate for them and help their voices be heard.

Learn More About Rare Patient Voice

  • Read about our Vision, Mission and Core Values.
  • Meet the Rare Patient Voice team.
  • View some of our trusted partners and learn how you can become a referral partner.

Are you a patient or caregiver who would like your voice to be heard?

Complete our sign up form!

Are you a researcher?

Submit a Proposal Request

Check Out Our YouTube Channel!

HTML tutorial

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

FOR PATIENTS

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

        

     
     

Rare Patient Voice, LLC, Market Research, Towson, MD

©2023. Rare Patient Voice. All Rights
Reserved. Privacy Policy. Disclaimers. Sitemap

©2023 . All Rights Reserved.

Copyright © 2023 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy | Cookies | ACCEPT
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT