"I recently participated in an epilepsy study and was paid very fast. The study was interesting and I actually learned something from it. This organization is completely legit and I can't wait for more studies with you all. Thanks so much."
Share your Voice to improve patients' lives!
Who knows better than you about your journey and experiences? We hear from patients all of the time about their unique experiences. Only you know what you have gone through and what you need! Sharing your voice can help you as well as those coming after you. The patient voice needs to be heard so that companies develop products and services that have a meaningful impact on patients’ lives. We connect you with researchers who are developing these products and services. Your voice can help you and others with your condition.
When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.
- You will earn the current equivalent of $100 USD per hour for participating in these studies.
- Read more about how we use your information.
By making your voice heard, you are a catalyst for change. Rest assured that your input will be used to help other patients like you!
We usually have over 100 studies running at any time, so there are many opportunities to participate. Currently, we are looking for patients and caregivers with many different health conditions. However, that does not guarantee we will have surveys for you. You might not hear from us for several months, or you might hear from us twice in one week!
We are proud to say that we’ve rewarded patients with over $9 million for participating in surveys since 2013!
We currently have over 100 studies open for patients and caregivers! See some of them here.
Meet us in person!
Rare Patient Voice likes it best when we can meet our members in person! Find us in the community or let us know about an upcoming patient event.
Already a member and need to update your profile?
If you would like to update your profile, here are some easy steps:
- Log in to your account
- Click personal or conditions
- From here you can change/update any of your signup information, including changing your email address and/or password, your medication(s) and your condition(s).