Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
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    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice
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Helping patients and caregivers share their voices

Trusted Partners

Rare Patient Voice is proud to partner with many wonderful organizations involved in advocacy, healthcare, and market research. Please contact us if you would like to partner with us too!

Adrenal Insufficiency United
American Association for Cancer Research - Cancer Today
American Heart Association - Southern Delaware
Aortic Hope
Arthritis Foundation
Backpack Health
BRCA Strong
Breathe Support
Caregiver.com
CareWise
Center for Chronic Illness
Children's Cardiomyopathy Foundation
Chronic Warriors
Cope Notes
Cured Foundation
CureLGMD2i Foundation
CVS Speaks
Danny's Dose
Ear Community
Eczema Holistic Healing
Elephants and Tea
Eosinophilic Family Coalition
Epilepsy Awareness Day
Fatty Oxidation Disorders
GRYT
Happy Healthy Caregiver
HealthHIV
Hemophilia Association of New York, Inc.
Hidradenitis Suppurativa
Hope for Hemophilia
HypoGal
I-Ally
Integrated Diabetes Services
Intellus Worldwide
International Pemphigus & Pemphigoid Foundation
JDRF Northern Texas Oklahoma
Kincaid's Kindred Spirits
Leave Your Mark
Legacy Bridges Foundation
Legacy Grace Project
Let Life Happen
LGS Foundation
Life and Family Foundation
Follicular Lymphoma
Love A Senior
Lungevity
Macular Degeneration Association
MDS Foundation
NAMI Philadelphia
National Kidney Foundation
Norma Leah Ovarian Cancer Initiative
Organic Acidemia Association
Our Brain Bank
OutSmart Disease
Patients Getting Paid
Patients Rising
Remember The Girls
Rise Above Epilepsy
Ronald McDonald House Charities – Central Florida
Sabrina Johnson Advocate
Sickle Cell Alliance Foundation
Solution Medical
The EPIC Foundation
The Valuable 500
ThinkGenetic
United Spinal Association
WEP Clinical
WhatNext

 

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

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For Related Groups

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