I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Patient Blog Posts
Client Blog Posts
Weekly Warrior: Meet Sydney
Sydney is our latest Weekly Warrior, and she lives with multiple chronic illnesses. First diagnosed in 2020 with hypothyroidism, things snowballed from there. But she has a positive attitude, choosing to … READ MORE
Weekly Warrior: Meet Tiffany
Tiffany is a blindness accessibility and audio description consultant. She has danced professionally with the company Jess Curtis Gravity in San Francisco and Berlin and serves on their Board of … READ MORE
Who Are RPV’s Clients?
Who are Rare Patient Voice clients? In this video clip, RPV President Wes Michael discusses the varied companies and organizations comprising our client list.
How Quickly Can RPV Recruit Patients? Wes Michael Explains
The recruitment phase of research studies can be a key part of a study’s potential success. While patient recruitment had taken a significant amount of time in the past, progress … READ MORE