Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Study Opportunities for Patients and Caregivers

We currently have over 100 market research studies open for patients and caregivers.  A few of the studies we are working to fill immediately are listed below.

If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact Debi Crist at debi.crist@rarepatientvoice.com

If you are NOT a member and you are looking for study volunteer opportunities, click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other similar studies.

Feel free to also share the link with friends or family who may be interested. 

Become a patient research volunteer today and get paid for your time.

Sign Up Here!

NUT Carcinoma Patients
55 min Phone Interview and Compensation is $85

Breast Cancer Patients
10 min Online Survey and Compensation $25

Foster Care - Looking for those who were in Foster Care
Online Survey 15 minutes and $25 compensation

Hodgkin's Lymphoma Patients and Caregivers
30 min Online Survey and Compensation is $50

Diffuse Large B-Cell Lymphoma Patients
20 min Online Survey and Compensation is $100

Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP) Patients and Caregivers
60 min Phone Interview and Compensation is $100

Non-Small Cell Lung Cancer, Colorectal Cancer, or Pancreatic Cancer Patients & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Dermatomyositis Patients
60 min Web-Assisted Phone Interview and Compensation is $100

Prostate Cancer Patients or Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Achondroplasia Caregivers
30 min Online Survey and Compensation is $50

Chronic Kidney Disease or Heart Failure Patients Canadian Residents
60 min Phone Interview and Compensation is $100

Follicular Lymphoma Patients or Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Osteoporosis Patients in the US or UK
60 min Web-Assisted Phone Interview and Compensation is $70

Cytomegalovirus Patients for a Clinical Trial

Anal Cancer Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

NASH and Obesity Patients
60 min Web-Assisted Phone Interview and Compensation is $100

Prurigo Nodularis Patients
90 min Web-Assisted Phone Interview and Compensation is $150

Prader Willi Syndrome Caregivers
60 min Phone Interview and Compensation is $100

IgAN Patients
60 min Web-Assisted Phone Interview and Compensation is $150

Generalized Pustular Psoriasis (severe subtype of Psoriasis)
30 min Web-Assisted Phone Interview and Compensation is $50

Rheumatoid Arthritis Patients
10 min Online Survey and Compensation is $50

Ovarian Cancer Patients and Caregivers (Diagnosed in the last 18 months)
60 min Web-Assisted Phone Interview and Compensation is $125

Esophagus (Esophageal) Cancer Patients
75 min Web-Assisted Phone Interview and Compensation is $125

Chronic Myeloid Leukemia Patients
30 min Online Survey and Compensation is $50

Immune Thrombocytopenia Purpura Patients
50 min Web-Assisted Phone Interview and Compensation is $80

Paroxysmal Nocturnal Hemoglobinuria (PNH) Patients
30 min Web-Assisted Phone Interview and Compensation is $50

Atopic Dermatitis Patients
30 min Online Survey and Compensation is $50

Hemophilia A Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Pulmonary Embolism Patients
45 min Web-Assisted Phone Interview and Compensation is $75

Nonvalvular Atrial Fibrillation Patients
45 min Web-Assisted Phone Interview and Compensation is $75

Deep Vein Thrombosis Patients
45 min Web-Assisted Phone Interview and Compensation is $75

Parkinson's Disease or Alzheimer's Disease Patients
60 min Phone Interview and Compensation is $100

Ankylosing Spondylitis Patients
20 min Online Survey and Compensation is $35

Polycythemia Vera Patients
60 min Web-Assisted phone Interview and Compensation is $100

Psoriasis Patients
20 min Online Survey and Compensation is $35

Epilepsy Patients
10 min Online Survey and Compensation is $50

Thyroid Eye Disease Patients and Caregivers
40 min Online Survey and Compensation $70

Breast Cancer Patients Canada
60 min Webcam Interview and Compensation is $100

Tardive Dyskinesia Patients and Caregivers
75 min Web-Assisted Interview and Compensation is $125

Erectile Dysfunction Patients
30 min Online Survey and Compensation is $50

Nonvalvular Atrial Fibrillation (NVAF) Irregular Heartbeat Patients
45 min Phone Interview and Compensation is $75

Amyloidosis Patients and Caregivers
75 min Web-Assisted Phone Interview and Compensation is $175

Venous Thromboembolism Caregivers
60 min Webcam Interview and Compensation is $150

Bladder Cancer Canada Residents
60 min Web-Assisted phone Interview and Compensation is $100

Neuromyelitis Optica (NMO) MALE Patients
30 min Zoom Interview and Compensation is $30

Migraine Male Patients
60 min Web-Assisted phone Interview and Compensation is $100

Sickle Cell Patients & Caregivers
12 min Online Survey and Compensation is up to $25

Warm Autoimmune Hemolytic Anemia
75 min Phone Interview and Compensation is $150

Dermatomyositis Patients
60 min Web-Assisted phone Interview and Compensation is $100

Lung Transplant or Allogeneic Hematopoietic Stem Cell Transplant Patients and Caregivers
60 min Web-Assisted phone Interview and Compensation is $100

Hypoparathyroidism Patients
60 min Phone Interview and Compensation is $100

Psoriatic Arthritis Patients
60 min Web-Assisted phone Interview and Compensation is $100

Please contact Debi Crist at debi.crist@rarepatientvoice.com with any questions.

Volunteer for Medical Research Studies Today

We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below. Click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies. If you don't see a study you might qualify for, complete this form to be considered for our other open studies.

In addition, we’re delighted to announce that we will be extending our recruitment services to clinical studies and trials on rare and non-rare medical conditions. Now, you may be invited to take part in these valuable trials, as well. Patients who participate in these clinical research studies can share their insights and experiences to help advance the future of medicine. It’s also worth noting that some of these studies are paid. 

Please feel free to share the link with friends or family who may qualify, and they’ll be invited to join Rare Patient Voice and invited to take part in the study.

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

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