Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice
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Helping patients and caregivers share their voices

For Advocacy Groups

Rare Patient Voice partners with patient support and advocacy groups in several ways to increase donations:

  • Request a referral link. You can invite patients and caregivers via email, your newsletter, or other means to contact us. If they decide to sign up, they each receive a $5 gift card and your organization receives a donation of $5 per patient.
  • Ask Rare Patient Voice to sponsor one of your group's events. We will invite members to sign up as we exhibit at the event.
  • Contact us at ContactUs@RarePatientVoice.com to do a free online survey of your members and provide you with the analyzed results.

Rare Patient Voice understands that advocacy groups need to keep the interests of its members at the forefront.

  • We will never ask an organization for members’ names or contact information.
  • Organizations can provide members with our information so that members can contact us about joining voluntarily only if they are interested.
  • We respect the privacy policies of all organizations with which we partner.

We are honored to have worked with over 100 advocacy and support groups to help us recruit patients and caregivers!  View some of the advocacy groups we have worked with or sign up to become a referral partner.

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Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

FOR PATIENTS

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

        

     
     

Rare Patient Voice, LLC, Market Research, Towson, MD

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