Clinical Trial Recruitment with Rare Patient Voice

Outreach Through Advocacy and Digital Platforms

The RPV Patient Advocacy Team (PAT) is connected with thousands of referral partners worldwide. These partners help us identify patients and family caregivers who want to be involved in research. In addition to sharing research opportunities on our social media platforms, we host a private Facebook page where we share directly with referral partners, increasing our ability to target specific trials.

In addition to our partnerships, we attend in person patient events, where we meet and sign up patients and family caregivers. We also leverage RPV’s vibrant social media accounts on multiple platforms.

Screening and Qualification

To ensure the success of your clinical trial, it is essential to recruit participants who meet the specific inclusion criteria for your study. Rare Patient Voice employs a rigorous pre-screening process to identify qualified candidates. We send targeted email invitations to our panel members with five to six initial screening questions tailored to the trial requirements.

Once these preliminary criteria are met, participants are directed to the client's screening platform for further evaluation. This two-step approach minimizes the burden on researchers by delivering pre-qualified candidates who are ready to participate.

Dedicated Project Management

Each clinical trial recruitment effort is assigned a dedicated project manager to act as your team’s primary point of contact. This ensures communication is clear and consistent throughout the process. Our project managers work closely with your team to understand your study's unique needs and develop a customized recruitment plan.

From initial outreach to participant engagement, our project managers oversee every detail to keep your recruitment efforts on track. They provide regular updates and are available to address questions or concerns. This hands-on approach allows us to adapt to changing needs and deliver a recruitment experience that exceeds expectations.

Our community is made up of thousands of patients and family caregivers from various backgrounds, in nine countries. These participants represent a wide range of conditions, from rare and ultra-rare diseases to more common illnesses like asthma, diabetes, and heart disease.

Through our referral partner program with patient advocacy organizations, support groups, and foundations, and by meeting and signing up patients and family caregivers at in person patient events, we continuously grow our network to ensure a broad selection of candidates for research.

We focus on connecting you with the right participants for your specific criteria. Whether your study requires rare disease patients or individuals with more prevalent conditions, our network is ready to meet your needs. This broad reach ensures meaningful data and impactful results for your research.

Personalized Support for Every Project

At Rare Patient Voice, our precision in patient recruitment is our golden rule. Recruiting the right patients, at the right time, for the right research study is our simple but powerful mantra.Each client is assigned a dedicated Project Manager who serves as the main point of  contact. We tailor our efforts to match your study's specific needs, your timeline and goals. The PAT also engages with a network of thousands of patient advocacy organizations, support groups, and foundations, and uses social media to enhance recruitment efforts. This hands-on approach ensures a seamless and stress-free experience from start to finish.

Global Reach

RPV provides recruitment services across the United States, Canada, the United Kingdom, Germany, Italy, France, Spain, Australia, and New Zealand, offering access to a global participant pool. This international reach allows us to support research that spans multiple regions and provides broader insights.